My Name is Joy Walker and I am part of the Myositis Support Network Group. I am 70 years old and was diagnosed clinically in 2004 with Inclusion Body Myositis (IBM). With this condition we all deteriorate at a different pace. I have had many falls but two that have left me with problems. These like all of us we learn to compensate and just get on. I now cannot go out without my scooter and if very close can walk with my 3 wheel walker. I am lucky to have a wonderful husband who realises everyday he has to do more for me. Reaching is now almost impossible. I can still drive at the moment.
I Have found this support group so helpful. We all need someone to talk to or ask questions. We have been waiting a long time to be able to launch this web site. Now very soon it will be complete. We want people to put help and ideas on a post and mobility tools we have found useful.